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I'm a 6 y/o baker with a rare form of skeletal dysplasia and that doesn't stop me from achieving my dreams. Please try my cookies!
"Even with all the hospital visits and blood tests that he has had to go through, and still not being able to have a full diagnosis of his condition to date, Jonah is a happy child.“He always looks on the bright side. He loves to sing and dance, and has a good sense of rhythm, ” says Yanagi. “Jonah also helps around the house, and takes care of his younger brother, Jamian, ” she adds."...Read More
"Jonah suffers from skeletal dysplasia, a rare genetic disorder that affects his bones and joints and hinders his growth and development. This disorder causes abnormally-shaped bones, especially in the head, spine and the long bones of the arms and legs." ...Read More
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Jonah was born on 23 December 2014, and is 6 years-old, of Chinese-Japanese heritage. He is cared for by his mother Yumi (a single parent) and joined by his 5 year-old younger brother Jamian.
Skeletal dysplasia, the disorder which Jonah has, causes abnormally shaped bones, especially in the head, spine and long bones of the arms and legs. Left untreated, it can result in difficulties in breathing, spinal problems as well as fluid buildup around the brain. Jonah loves to play with kids but due to his physical condition, he has to be extra careful because a simple fall may cause problems to his bones.
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